So, I’m a Celiac. (and some background)

December 30, 2007

Let me give you some background on my health. I gave birth to my daughter on June 2nd of this year, the pregnancy went smoothly and the birth was even smoother. Now here’s the gross part, about 3 weeks after she was born I developed an anal fissure. It made using the bathroom comparable to pushing out razor blades. So that went on until the middle of October of this year. At that point I was in so much pain I never left the bathtub seeing as warm water was the only thing keeping me sane. I ended up scheduling a sphinterotomy. The day before the surgery I knew something wasn’t right, I was in so much pain at one point that I was in the bathtub hysterical for 4 hours. So I went into surgery and was proven right. I had a giant abscess and was almost septic. Thankfully the surgery was a success.

Now here’s where my stomach comes in. I started getting “the runs” 5 days before my surgery, and after finding out about the abscess I figured it was just because of that… but it didn’t stop. It’s been 2.5 months now. I’ve seen my general doctor as many times as I’ve ever even been to a doctor, and now have a gastro-doc. She prescribed an Ultrasound of my gallbladder (negative), and an upper endoscopy. During the endoscopy they found an ulcer in my stomach and some inflammation and took some biopsies. The first biopsy that came back was positive for Celiac’s. Now the strange part is my blood tested negative for the anti-bodies, but yet here I am on Gluten-free diet. I started said diet yesterday.

So with this disease what basically happens is your immune system sees Gluten as an “enemy”, so when you ingest it your body attacks it once it hits the small intestine. In turn harming your intestine, which makes it harder for your body to absorb all the needed nutrients from the food you eat. That’s malabsorption. The symptoms are : “the runs”, fatigue, weight-loss, muscle/joint pain, short stature (mostly in children), gas, stomach/abdominal pain, anemia and a whole list of other not so fun goodies.  There isn’t a cure out there yet, the only treatment is the diet.

All of this diet stuff is really daunting…  all of my favorite foods are off limits now.  There are Gluten Free substitutes, but they don’t taste the same.  Plus, worrying about cross-contamination is driving me nuts too!  I think the worst part about the whole new diet is that it’s so expensive!  I bought Gluten-Free bread yesterday for $5.99!  I usually buy normal bread for $1.09.

So I created this blog to keep a bit of a diary of all things Celiac.  Plus, maybe someone out there is new at this too and can read and realize that they aren’t the only ones.


3 Responses to “So, I’m a Celiac. (and some background)”

  1. Megan Says:

    I was reading your story and I’m very glad for you that you found out what was wrong. It sounds like you are on your way to recovery. I was wondering if you were having any memory or cognitive difficulties before you were diagnosed. This past summer I had a gastric ulcer and it seems as though I have not been the same ever since then. I have been having cognitive problems along with unexplainable weightloss and fatigue.

  2. celiacstar Says:

    I’m not quite sure that it is related, but some of the research I’ve been doing on the disease says it very well could be. I know with me I got alot more forgetful, easily confused, and easily frustrated. I think that if those are related it’s due to malabsorbtion and/or malnutrition. Thanks for the comment.

  3. glutenfreedance Says:

    Yuck, what an awful way to find out.

    It really is a pain to alter your diet for this. We’ve been on it for two years now and I’m just finally getting the hang of it. I’m so glad for the internet. I don’t know how people did it in the “old days.” The docs we’ve had, even the good ones, have been pretty useless. One doc told us that our Celiac would just have to eat only rice the rest of his life. OK, he wasn’t one of the good ones, but the other docs didn’t really know what to tell us except “no gluten” and we were left to figure out what the heck gluten was.

    Good luck.

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